So I had my mid-treatment PET scan on Tuesday. This time I had a harder time sitting still. Didn't help that halfway through my hour of silence and no stimulus that they had me get up and move to a much smaller closet and much more uncomfortable chair. So I kept stretching and then immediately saying "shoot!". The scan doesn't bother me at all any more. So they took my pictures and sent me on my way.
Thursday I had chemo and an appointment with Dr. Hancock to go over my results and determine the rest of the treatment plan. So we get to the doctors office and they pulled us (myself, Brandon, my father, and my mother) back and took my weight, blood pressure, and oxygen levels (which they made me sit for a while because it wasn't high enough, so I had to breath for a while to get the levels up...) and then took us to the pediatrics infusion room to meet with Dr. Hancock. He comes in and sits down and goes into how I did with this last round of treatment and so on and so forth... Then he asks if we want to look at my scans. He pulled up the first pet scan and showed us all the active cancer cells that were taking up the radioactive isotopes making them black like the brain, heart, liver, bladder, and kidneys. He then pulled up the second PET scan and the difference between the two was staggering. The second PET scan showed that I have no active cancer cells! HOORAY!
We then talked about my treatment plan. Two more cycles of chemo (4 more times) and because I am stage 2B I may need to do Isolated Radiation Therapy. This kind of radiation has a very low chance of hitting Brest tissue which could cause breast cancer down the road. But that is a very small chance. The doctors just want this to go away and not come back, and the best treatment plan for stage 2B is chemo and then radiation.
After all was said and done I went and got my port accessed and had me some chemotherapy. Fun, fun times. So good news! NO ACTIVE CANCER CELLS!! & HALFWAY THROUGH TREATMENT!!!!
Until I know more!
Emily
My Cancer Chronicles
I was diagnosed with Hodgkin's Lymphoma at the age of 25. This is my story!
Saturday, April 26, 2014
Tuesday, April 15, 2014
Half Way Point?
Thursday has come and gone and boy am I glad. I am not loving Thursdays anymore. Before this whole cancer fiasco Thursdays were one of my favorite days because I got to go and sing with a bunch of ladies I absolutely adore. Now Thursdays are "Chemo Days" as my mom likes to call them. Anyways, this last chemotherapy treatment was my fourth time going and the end of the second cycle. Hopefully that means I am half way done! HUZZAH!
My father and my sister Jaclyn accompanied me to my appointment. It is very nice to have supportive and loving family who are willing to sit with me during my treatments. I would be so bored without them. My sister in law watched Paisley and Jude along with her 3 wonderful wild ones. I am not sure how she has the energy to do that because it is like having a 5 year old and two sets of twins! All I know is that I love her and I can never repay all of her kindnesses to me.
This chemo treatment seems to me to be the roughest of them all so far. It seemed to take the most out of me. After treatment we picked up my little ones and headed home. Once home my Dad sat with my for a while and played with Paisley and little Jude dude. My dear sweet friend Mackenzie was in town so she stopped by to see me(Man, can I say how loved I feel? I get phone calls, visits, treats, letters and a whole lot more from friends and loved ones. I sure do feel loved). Paisley went home with Grandpa Jones and the next day we had a baptism for me sweet niece Kali June Bug. It was beautiful and Kali June was glowing with the spirit.
April 5th & 6th was the Church of Jesus Christ of Latter Day Saints semi-annual general conference. It is where we all gather and listen to our Prophet and other leaders of the church give us guidance and direct council from the Lord. It was so amazing, like it always is, and I took away quite a bit to implement in my life. One talk has been sticking out to me as I am going through chemotherapy and having a really hard time with nausea and energy. This talk is by President Deiter F. Uchtdorf called "Grateful In Any Circumstance". Here are two videos of it. The top one is a highlight of the talk that is about a minute long and the bottom one it the full 17 minute one. If you have 17 minutes I encourage you to give it a try.
That's all!
Emily!
My father and my sister Jaclyn accompanied me to my appointment. It is very nice to have supportive and loving family who are willing to sit with me during my treatments. I would be so bored without them. My sister in law watched Paisley and Jude along with her 3 wonderful wild ones. I am not sure how she has the energy to do that because it is like having a 5 year old and two sets of twins! All I know is that I love her and I can never repay all of her kindnesses to me.
This chemo treatment seems to me to be the roughest of them all so far. It seemed to take the most out of me. After treatment we picked up my little ones and headed home. Once home my Dad sat with my for a while and played with Paisley and little Jude dude. My dear sweet friend Mackenzie was in town so she stopped by to see me(Man, can I say how loved I feel? I get phone calls, visits, treats, letters and a whole lot more from friends and loved ones. I sure do feel loved). Paisley went home with Grandpa Jones and the next day we had a baptism for me sweet niece Kali June Bug. It was beautiful and Kali June was glowing with the spirit.
April 5th & 6th was the Church of Jesus Christ of Latter Day Saints semi-annual general conference. It is where we all gather and listen to our Prophet and other leaders of the church give us guidance and direct council from the Lord. It was so amazing, like it always is, and I took away quite a bit to implement in my life. One talk has been sticking out to me as I am going through chemotherapy and having a really hard time with nausea and energy. This talk is by President Deiter F. Uchtdorf called "Grateful In Any Circumstance". Here are two videos of it. The top one is a highlight of the talk that is about a minute long and the bottom one it the full 17 minute one. If you have 17 minutes I encourage you to give it a try.
That's all!
Emily!
Saturday, March 29, 2014
In 2008
In 2008 I was asked to participate in my home stakes Relief Society's tribute to Marjorie Hinckley called "Letters". Anyways I had the privilege to sing "He Hears Me" by Hillary Weeks. Its been playing in my mind constantly lately. I thought I would share! Its a great song! I hope you enjoy!
Emily
Emily
Thursday, March 27, 2014
Nose Job? Temple, Chemo 2.0 and good news!
Last Thursday I had an appointment with my ENT Dr. Hinckley. It was a follow up from the biopsy to make sure that I was healing correctly. While I was there he looked at my scar and said it looked wonderful! Then he looked at the dissolvable stitches from installing the port and was so mad! There were two stitches that the surrounding skin was irritated and red. So he grabbed some sterile instruments and pulled them out. He was grouchy that they left them in so long, with them being irritated, and that it will cause more scaring. He is such a sweet man!
He was finishing my exam when he looked up my nose. My nose apparently deviates to the right and that can cause major headaches and serious and constant sinus infections (welcome to my life). He suggested that after I beat cancer to have surgery to correct the deviation. He said "while I am in there we could do a nose job if you want" or something to that effect. I am not sure how I feel. I love my Jones nose. I may not have always and I may have just gotten over my large nose complex but I love it now. I have a obvious feature from my Grandpa and I am not sure if I want to part ways with it. But its a possibility? That's so weird. Haha
Yesterday I was feeling pretty great! My little sister texted me and asked if I wanted to go to the temple with her. I SO DID! I have been feeling like I needed to go and this was the perfect opportunity! My dear sweet sister in law and older brother watched Paisley and Jude so I could go. I love the Gospel. Its so wonderful to have the truth and the knowledge of the Plan of Salvation I have. I am so blessed to be a member of The Church of Jesus Christ of Latter Day Saints. You can find out more about LDS here: http://www.mormon.org/
Amy and Me at the TEMPLE! (she has the cutest baby bump of all time!!)
Today I had Chemotherapy round 2! I was scheduled to meet with my Dr. today, but because Dr. Dickson only comes down Mondays and Wednesdays I was scheduled to talk to Dr. Hancock. Which didn't happen either because they double booked him and I was the one who was bumped to the P.A. I Love the P.A. Jed, I was just expecting something different. He told us some good, NO, GREAT news today. I was under the impression that I would do 4 rounds of Chemo and then a PET scan to see if the cancer has gone away and if it has then we will do two more rounds just to make sure. Today Jed told us that we would have a PET scan after this round (#2) before the next (#3) and if it is gone we will only have to do 2 more (round #3 and #4)!!! That lessens my treatment by 2 entire months! Instead of being done in August we could be done in June if everything goes according to plan!!!! HOORAY! That would be wonderful! I would be such a happy camper! (k, I love camping, so I am always a happy camper unless I'm 9 months pregnant, like last summer..)
Chemo went fine today! It was not as busy as last time so I was out a lot quicker. There was this little old couple across from me and they looked just like a cartoon and I wanted to keep them. SO So cute!
That's All FOLKS!!!
Until I know more!
Emily!!!
He was finishing my exam when he looked up my nose. My nose apparently deviates to the right and that can cause major headaches and serious and constant sinus infections (welcome to my life). He suggested that after I beat cancer to have surgery to correct the deviation. He said "while I am in there we could do a nose job if you want" or something to that effect. I am not sure how I feel. I love my Jones nose. I may not have always and I may have just gotten over my large nose complex but I love it now. I have a obvious feature from my Grandpa and I am not sure if I want to part ways with it. But its a possibility? That's so weird. Haha
Yesterday I was feeling pretty great! My little sister texted me and asked if I wanted to go to the temple with her. I SO DID! I have been feeling like I needed to go and this was the perfect opportunity! My dear sweet sister in law and older brother watched Paisley and Jude so I could go. I love the Gospel. Its so wonderful to have the truth and the knowledge of the Plan of Salvation I have. I am so blessed to be a member of The Church of Jesus Christ of Latter Day Saints. You can find out more about LDS here: http://www.mormon.org/
Amy and Me at the TEMPLE! (she has the cutest baby bump of all time!!)
Today I had Chemotherapy round 2! I was scheduled to meet with my Dr. today, but because Dr. Dickson only comes down Mondays and Wednesdays I was scheduled to talk to Dr. Hancock. Which didn't happen either because they double booked him and I was the one who was bumped to the P.A. I Love the P.A. Jed, I was just expecting something different. He told us some good, NO, GREAT news today. I was under the impression that I would do 4 rounds of Chemo and then a PET scan to see if the cancer has gone away and if it has then we will do two more rounds just to make sure. Today Jed told us that we would have a PET scan after this round (#2) before the next (#3) and if it is gone we will only have to do 2 more (round #3 and #4)!!! That lessens my treatment by 2 entire months! Instead of being done in August we could be done in June if everything goes according to plan!!!! HOORAY! That would be wonderful! I would be such a happy camper! (k, I love camping, so I am always a happy camper unless I'm 9 months pregnant, like last summer..)
Chemo went fine today! It was not as busy as last time so I was out a lot quicker. There was this little old couple across from me and they looked just like a cartoon and I wanted to keep them. SO So cute!
That's All FOLKS!!!
Until I know more!
Emily!!!
Monday, March 17, 2014
Look Good Feel Better and Chemo 1.2
Last Tuesday I went to a class by the American Cancer Society called Look Good... Feel Better! It was way fun! The little lady who was teaching was so cute! She taught us all about how to put make up on without introducing germs and what not. There was just me and another little lady named Judy. Judy was so sweet and just had this glow about her. We received a bag of makeup (FANCY DANCEY MAKEUP) and got to play with it. We also learned how to use a t-shirt as a head covering. I have not lost my hair yet (knock on wood) so putting things on my head was super silly to me. We got to pick out a head covering ( I picked out a peachy turban) and a wig! So I picked out a wig. I knew it was the wig for me when my dear sweet mother (who came along) started to cry. I still feel silly wearing it but I also still have hair. Its a cute little bob and it is kind of a brownish blondish color. It was a fun class and if you ever find yourself in a cancerous position (I hope you don't) get signed up for that class! You can learn more about it at www.lookgoodfeelbetter.org
Here is just a peek of my fancy makeup! It is glorious.
That Thursday I had my second go at my first round of chemotherapy. There were a lot more people in the treatment room this time around. My mom went with me and when we got there they put us in the room to talk to Jed the P.A.. We did not need to talk to Jed but we waited in the room and after about a hour he came in and said "Why am I seeing you? I don't need to see you!" we agreed and then we got put in the treatment room and waited another hour or so to get started. There were so many cute little old ladies in there this time but there were two patients that just broke my heart. There was Lung Cancer Larry who doesn't believe in anything or have anybody except beer. And there was this little tiny girl walking around. She had to be like 4 or 5 years old. Oh, my heart was broken. Larry had his last chemo treatment today and last Radiation tomorrow so hopefully all is better with Larry. Larry was also hitting on my Mom. She is very beautiful so I don't blame him. I am just glad that Lung Cancer Larry didn't meet my Father Bart. That would have been Funny!
Here are some pictures of my crazy kids today just to brighten up this post a bit.
Paisley with her Band-aid nose.
Jude cuddling during his nap.
Well that's about as much as a post as I have in me. Since my chemo on Thursday I have basically only been sleeping. Fun Fun stuff!
Until I know more!
Emily!
Here is just a peek of my fancy makeup! It is glorious.
That Thursday I had my second go at my first round of chemotherapy. There were a lot more people in the treatment room this time around. My mom went with me and when we got there they put us in the room to talk to Jed the P.A.. We did not need to talk to Jed but we waited in the room and after about a hour he came in and said "Why am I seeing you? I don't need to see you!" we agreed and then we got put in the treatment room and waited another hour or so to get started. There were so many cute little old ladies in there this time but there were two patients that just broke my heart. There was Lung Cancer Larry who doesn't believe in anything or have anybody except beer. And there was this little tiny girl walking around. She had to be like 4 or 5 years old. Oh, my heart was broken. Larry had his last chemo treatment today and last Radiation tomorrow so hopefully all is better with Larry. Larry was also hitting on my Mom. She is very beautiful so I don't blame him. I am just glad that Lung Cancer Larry didn't meet my Father Bart. That would have been Funny!
Here are some pictures of my crazy kids today just to brighten up this post a bit.
Paisley with her Band-aid nose.
Jude cuddling during his nap.
Well that's about as much as a post as I have in me. Since my chemo on Thursday I have basically only been sleeping. Fun Fun stuff!
Until I know more!
Emily!
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